Benefits of Special Needs Trusts

As parents and caregivers of individuals with disabilities, ensuring long-term financial security and care for your loved ones is paramount. One of the most powerful tools available for this purpose is a Special Needs Trust (SNT). In this guide, we’ll explore what Special Needs Trusts are, why they’re essential, and how they can protect your loved one’s future.
Understanding Special Needs Trust?
A Special Needs Trust is a specialized legal document that allows you to set aside assets for a person with disabilities while maintaining their eligibility for crucial government benefits like Supplemental Security Income (SSI) and Medicaid. Without proper planning, an inheritance or gift could disqualify your loved one from receiving these essential benefits.
Benefits of Creating a Special Needs Trust?
Government benefits often provide only basic support, covering fundamental needs like food, housing, and healthcare. However, these benefits rarely address quality-of-life expenses such as:
- Additional therapy sessions
- Special equipment
- Educational programs
- Entertainment and recreation
- Personal care attendants
- Vacations or travel
- Technology aids
- Hobbies and activities
A Special Needs Trust can fund these extra expenses while preserving eligibility for government assistance programs.
Types of Special Needs Trusts
1. First-Party Special Needs Trust
- Created with the beneficiary’s own assets
- Often used for settlement proceeds or inheritances received directly
- Must include a Medicaid payback provision
- Must be established before the beneficiary turns 65
2. Third-Party Special Needs Trust
- Funded with assets from parents, grandparents, or other loved ones
- No Medicaid payback requirement
- Can be established at any time
- Offers more flexibility in distribution and management
Key Considerations When Creating a Special Needs Trust
1. Choosing the Right Trustee
Select someone who:
- Understands government benefit rules
- Can manage finances responsibly
- Knows the beneficiary’s needs
- Will be around long-term
- Can work with professional advisors
2. Funding the Trust
Consider funding sources such as:
- Life insurance policies
- Retirement accounts
- Investment portfolios
- Real estate
- Regular savings
3. Letter of Intent
If you are the primary caretaker, it may be a good idea to include detailed information about:
- The beneficiary’s daily routine
- Medical needs and preferences
- Living arrangements
- Educational requirements
- Social activities and interests
- Dietary needs and restrictions
Common Mistakes to Avoid
- Waiting too long to establish the trust
- Naming the trust as a direct beneficiary of retirement accounts without proper planning
- Choosing an inappropriate trustee
- Not coordinating with other family members’ estate plans
- Failing to review and update the trust regularly
The Role of Professional Guidance
Creating a Special Needs Trust requires careful planning and expertise. Working with an experienced estate planning attorney ensures that:
- The trust is properly structured
- Government benefit eligibility is protected
- Tax implications are considered
- Family goals are met
- Future modifications are possible if needed
Next Steps
Planning for a loved one with special needs requires thoughtful consideration and expert guidance. While a Special Needs Trust is a powerful tool, it’s just one part of a comprehensive care plan.
Schedule a consultation with our experienced estate planning attorneys to discuss your family’s specific situation and create a plan that provides for your loved one’s future. Contact us at contact@jlonglaw.com or 312-344-3644 if you have any questions regarding this process.
Remember, the sooner you begin planning, the more options you’ll have to ensure your loved one’s long-term security and quality of life.

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